DALLAS, Nov. 12, 2020 /PRNewswire/ — Today marks the 15th Anniversary Sam’s Night – a bounded accident hosted by the Killian ancestors benefiting Parent Project Able-bodied Dystrophy (PPMD), a nonprofit alignment arch the action to end Duchenne able-bodied dystrophy (Duchenne). To date, this accident has aloft over $2.2 million, all of which has gone anon to award a cure for Duchenne.
Duchenne able-bodied dystrophy is the best accepted baleful abiogenetic ataxia diagnosed in childhood, affecting about one in every 5,000 alive macho births.
“In 2004, Sam was diagnosed at the age of three with Duchenne able-bodied dystrophy. We were devastated and overwhelmed, atrocious to do annihilation to advice our son. That is back we begin PPMD and its architect Pat Furlong. PPMD was there for us from the actual alpha and continues to be there for families beyond the country as they try to cross a difficult diagnosis,” says Stefanie Killian, Sam’s mom. “We’re so beholden to our amazing community, friends, sponsors, and volunteers who accompany us anniversary year, acceptance us to accession much-needed funds for Duchenne analysis that will one day amusement not aloof Sam, but all those active with this adverse disease.”
Sam’s dad, John, adds, “Sam’s Family Fun Day was started in 2005 as a way to advice brainwash others about Duchenne, and to advice accession funds to abutment PPMD’s analysis mission. After 10 years as a fun ancestors event, the we absitively to change Sam’s Day to Sam’s Night. Thanks to our community’s absurd support, we are accepting an appulse on this disease, and how it affects the 150,000 boys about the apple with Duchenne.”
Due to accepted restrictions about ample gatherings, the Killians absitively to authority a basic accident this year, accouterment their association the befalling to abutment this absurd accident and its mission from the abundance of their home or the approach of their hand.
“The Killians accept been allotment of the PPMD ancestors back the aboriginal canicule afterward Sam’s diagnosis, and we accept admired accepting to apperceive their ancestors over the years. While every family navigates a Duchenne analysis differently, for the Killians, it meant adopting money to advice advance the development of treatments and a cure. We are so beholden to the Killians and their ancestors and accompany who accomplish Sam’s Night such a admirable anniversary event. Because of the passion, energy, and adherence of this community, we are assured that we will end Duchenne,” said Pat Furlong, Founding President & CEO of PPMD.
Sponsors of Sam’s Night accommodate Clarion Partners, CBRE, Chicago Title, Colliers and Berkshire Hathaway, Cushman Wakefield, Ernst & Young, JLL, Northwestern Mutual, PricewaterhouseCoopers, REDA, Stream Inc., Trammell Crow Company, Vinson and Elkins, and Willmeng Construction.
It’s not too backward to accord to the fundraising accomplishment by visiting the Sam’s Night website. To apprentice added about Parent Project Able-bodied Dystrophy, visit www.ParentProjectMD.org.
About Parent Project Able-bodied Dystrophy
Duchenne is a baleful abiogenetic ataxia that boring robs bodies of their beef strength. Parent Project Able-bodied Dystrophy (PPMD) fights every distinct action all-important to end Duchenne.
We appeal optimal affliction standards and ensure every ancestors has admission to able healthcare providers, acid bend treatments, and a association of support. We advance acutely in treatments for this bearing of Duchenne patients and in analysis that will account approaching generations. Our advancement efforts accept anchored hundreds of millions of dollars in allotment and won four FDA approvals.
Everything we do—and aggregate we accept done back our founding in 1994—helps those with Duchenne alive longer, stronger lives. We will not blow until we end Duchenne for every distinct being afflicted by the disease. Accompany our action adjoin Duchenne at EndDuchenne.org. Follow PPMD on Facebook, Twitter, and YouTube.
View aboriginal agreeable to download multimedia:https://www.prnewswire.com/news-releases/sams-night-celebrates-15-year-anniversary-301172157.html
SOURCE Parent Project Able-bodied Dystrophy (PPMD)
Download Amazing Quotes – Download Amazing Quotes
| Pleasant to help my personal weblog, in this particular occasion I will demonstrate concerning Download Amazing Quotes. And now, this is the 1st impression: